Kathie Gagne died 4,642 days ago.

RE: Postal Mail
December 14th, 2011 @ 7:00 am

Sophia Mas at Stewart-Marchman responded to my email from December 12th:

 
 
 
 

1 I’ve removed my sister’s name, but I wanted to point out that this was the first of many, many times that Sophia spelled it incorrectly, even though she frequently was seeing the proper spelling in emails from me and my sister.

My Sister Responds to Sophia
December 13th, 2011 @ 3:17 pm

Here is my sister’s emailed response to Sophia Mas:

Hi, David and Sophia.

I do not have restrictions as to when you can call and look forward to being able to all come together for mom’s best interest.

I would be willing to look into moving mom to Seattle, but, first and foremost, I am hoping to hear from the doctor as to what would be best for her overall. I appreciate what you and your co-workers have been doing to help and echo David’s feelings about your responsible team.

An Email to Sophia
December 13th, 2011 @ 2:09 pm

This is an email I sent to Sophia Mas at Stewart-Marchman:

Sophia,

I am always available. You can call me at any time of the day or night. If my sister has any restrictions on when she is available, she will have to let us know.

Thank you very much for the extensive details about my mom’s current situation and routine. I appreciate it tremendously. As terrible as this is, it is a little comforting to know that she is in the hands of a responsible team that seems to care.

I can’t imagine how my mom could move to Seattle, as my sister does not have the means to care for her. And moving her to Los Angeles would be absurdly expensive — the cost of living here is many, many, many times what it is in Florida — and I do not currently have the financial resources to care for her, even if I didn’t have a new toddler who receives the vast majority of my money and attention these days.

My sister and I have not yet discussed when either or both of us could visit; we are both still — I think — anxiously waiting for news from Dr. Caliendo about my mom’s projected long-term stability and needs.

Thank you again for all your help.

PS: Yesterday I emailed to ask you about postal mail, but I guess you missed it. If I wanted to send my mom a postcard, or a photo of her grandson, how should I address it? Are patients allowed to receive mail there?

David Vincent Gagne

News
December 13th, 2011 @ 1:44 pm

My sister sent me the following email at 1:23PM PST:

Hey, David.

Have you spoken to any of Mom’s doctors yet? I was wondering if you have heard anything new about their diagnosis or Mom’s release date, etc.

Love you.

[name redacted]

I replied — and I probably should have been less harsh — about twenty minutes later:

Hey [name redacted],

No, I have not spoken with Dr. Caliendo since last week. (I told you all about it.)

He is the only doctor that is relevant at this point.

I have had several email exchanges with Sophia Mas, the therapist assigned to mom, and I have either copied you or forwarded to you all of them and all of my responses.

Sophia sent me an email this morning but I have not yet had a chance to reply. I’ll do that in just a minute.

I called last night and talked to mom for just a couple of minutes. (I spoke with Anna at the nurses station for a few minutes first. She was very nice but didn’t provide any meaningful information.) Mom sounded a little drunk. She began by telling me how much Jesus loves me and how as long as we put our faith in Jesus, everything will be okay. It was a little strange because she hasn’t tried talking to me (seriously) about God or Jesus in about twenty-five years. She called me [name redacted] throughout the whole conversation, though, so maybe she couldn’t understand who I was. After she explained that Jesus loves me, she made me promise not to let anyone ever come between us and that was about it. She didn’t seem interested in talking, or maybe like she was ashamed to be using the phone. It was very sad. (Though SHE didn’t seem sad.)

I haven’t heard anything about a diagnosis, either. Anna the nurse last night indicated that some people stayed at Stewart-Marchman for just a couple of days, while others required several weeks or more to “stabilize”.

Sophia and Anna both told me that they have had to change mom’s roommate several times because she insists on going through their things, trying to steal their stuff, and generally pushing them to exasperation.

I’m confused by your reference to a “release date”. You do understand that there is not going to be a “release date”, right? She isn’t going to move in with [name redacted] or [name redacted], and she is never going to move back into her apartment and live alone again. She is never going to be able to live somewhere without constant supervision, so it’s not even like she could move in with you or me. Mom is going to be staying at Stewart-Marchman until we move her into a long-term care facility, like an ALF. I can’t imagine being able to afford — or having the time — to fly to Florida to do anything until at least the middle of January.

Love,
dvg

Sophia Tells Me about Stewart-Marchman
December 13th, 2011 @ 6:49 am

Sophia Mas at Stewart-Marchman sent me the following email describing what the facility is like:

David,

I am glad that you are keeping your sister abreast of your mother’s stay here – I will try to get a conference call soon when you, your sister & possibly Dr. Caliendo – not sure it will be today, but certainly this week – I’ll try – let me know when is a good time for both you & your sister to be available? –

Your mother has an assigned bed & room – sh has bed sheets and as many blankets as she wishes – she can keep 3 sets of clothing and we wash clothes & towels daily (why the clothes/laundry basket in their room) there are 3 beds in her room – she may not always have the same room-mates because this is a Crisis Stabilization unit where the average stay is 3 to 5 days but she has been in the same room since she arrived – There is a sign on her door w/her name in big letters because she gets lost – The unit has 2 wings – the nurse’s station overlooks both wings – The larger wing has a large communal area where there is a TV chairs & tables and clients can do puzzles, paint, write & draw, talk to each other or watch TV – One to two groups are conducted in that area during the day & afternoon shifts – there are 6 rooms at each side of the hall one side is assigned to females and the other side males – there are 4 full bathrooms on both units there is a screen porch at one end of the hall where clients have their snacks between each meal,( we have a nutritionist who plans 3 full meals a day and snacks) usually fruits, milk & cookies, etc… the screen room opens to an outside patio where there are picnic tables and a baseball court – there is also a large grass area surrounded by a tall wooden fence approximately 20 ft tall – Perpendicular to the Nurse’s station is another unit w/the same configuration yet smaller it has 4 rooms on each side of the common area – The larger unit where your mother is has access to the smaller unit and the smaller unit has access to the hallway that leads to Dr’s office, the exam room (where clients get a physical when they come in to determine if they are able to stay in our facility w/out further medical needs – ex: shunts, non-ambulatory etc..), the cafeteria and the arts, crafts room & the therapists offices – Our bed capacity is 30 – we have two teams – Your mother is on team II – Team I has a Psychiatric nurse practioner, a nurse, a therapist & discharge planner – Team II has a Psychiatrist – Dr. Caliendo, the day nurse is usually Judy, a DC planner, Rodney & myself the therapist – there is an approximate ratio of 1 staff per 2 to 4 clients – assigned on the floor besides the teams. There are cameras monitoring the common areas (not the bedrooms or bathroom for privacy ) however there 15 minute checks meaning staff makes sure we know what each client is specifically doing every 15 minutes – during the day we make sure that everyone is out of the room and participating in whatever activity is offered including vitals – at night a staff checks the bedroom q 15 min. to see if they are OK – I check the unit each morning after getting an update from the Nurse and spend time w/each client & sometimes bring clients to my office that need more care & we usually meet as a treatment team & see the clients together w/ Dr. Caliendo who sees clients usually regularly & is kept abreast of any needs or changes in client’s status. Everyday there is visitation allowed in the dinning room from 1 to 2pm and from 6:30 to 7:30pm – I hope this gives you a better idea of where your mother is and what goes on here – I know she is not able to give you much –

I wonder if you or your sister are planning to come and visit & help w/your mother’s transition to her return to her apartment or to a group home or if you’ve discussed maybe moving her closer to Seattle or CA.

Take Care,

Sophia

Postal Mail
December 12th, 2011 @ 2:58 pm

I sent this email to Sophia Mas at Stewart Marchman:

Sophia,

If I wanted to send my mom a postcard, or a photo of her grandson, how should I address it?

Are patients allowed to receive mail there?

Thanks in advance,
David Vincent Gagne

She replied to me two days later.

Her Functioning Self
December 12th, 2011 @ 2:49 pm

I sent this email to Sophia Mas at Stewart-Marchman:

Hello, Sophia,

I am again copying my sister [name redacted] on this email.

I unfortunately do not expect my mom to snap back to her functioning self very quickly. It would be difficult for me to qualify exactly what “her functioning self” might be, because — although, to be sure, she has gotten progressively exponentially worse in the last few months — I do not know that in my lifetime she has ever NOT been overwhelmingly depressed. It has been at least two years since I have had a legitimate “conversation” with the person that I would recognize as my mother. I miss her so much; and it is so painful.

I think my little sister and I (and all our family, truthfully) simply always assumed that was “just the way mom is”. We have always understood at some level that she was damaged, but didn’t appreciate how severely until very recently because we had no frame of reference. (Recall the experiment with the rhesus monkeys.)

You said that my mom had just completed her afternoon nap. Where does she nap in the afternoon? Does she have an “assigned” bed? Does she have her own room or does she share it with someone else?

How often does my mom see Dr. Caliendo? Does he review her medications and progress on a daily basis?

Thank you again for your kindness,

David Vincent Gagne

Another Awful Call
December 12th, 2011 @ 1:40 pm

I forwarded my sister the earlier email from Sophia Mas, and added this note:

[name redacted],

Sophia didn’t include you in her response to me, so I’m forwarding you what she just sent me. You can read it below.

In Sophia’s message she refers to talking to me on the phone. That was just a few minutes ago, around 1:00pm PT. Unfortunately she called while I was in the middle of a loud restaurant and it was very difficult for me to understand either one of them. Mom didn’t seem to be making any sense, though. She kept telling Sophia that I had a new grandchild, and Sophia kept trying to make her understand that [name redacted] is her grandchild and not mine. She did remember [name redacted]’s name, which was sort of nice, but had no answer at all when Sophia asked how old he was. She said she thought he was 35, and then Sophia asked if she meant that I was 35 and not [name redacted] (and that was extra confusing because she had previously correctly been able to tell Sophia that I am 38). But mom seemed to be just a deer in the headlights faced with these questions.

It was just another awful call.

David Vincent Gagne

Update
December 12th, 2011 @ 1:27 pm

I just received the following email from Sophia Mas at Stewart-Marchman:

David,


I can see how is difficult for you to not see your mother snap back to he
Functioning self - We hope that she will improve however I don't know her recovery time-line & to what degree she will recover fully - I saw your mother this am & again when I brought her to my office.  There are times during the day when she is clearer than others.  Usually if she's been laying down it takes her a while to get oriented and be in the present moment - when you recently talked to her she had just had the afternoon nap - we have "quiet time" from 2:30 to 3:30pm.  In the morning she was more alert & she attended group - after lunch she was very confused & grabbed clothes belonging to another client & picked-up her basket of clothes (each resident has a laundry basket in their room) and said she was leaving as she proceeded to try opening the locked door from the unit to the hallway  - had to be given Ativan prn to calm down - Dr. Caliendo saw her & adjusted her medications -  I will give you a call tomorrow morning your time -  take care

Sophia
Re: Kathleen Gagne
December 12th, 2011 @ 11:26 am

This is an email I just sent to Sophia Mas at Stewart-Marchman:

Sophia,

I am copying my sister [name redacted] on this email.

I called and talked to my mom for about five minutes on Friday night. (It was about 8:30pm your time.) She seemed to not understand that she wasn’t in her own apartment. For example: Some other phone was ringing in the background and she asked me to wait for her to go answer it, and I had to explain that she didn’t need to do that. I told her the good news about [redacted], and she seemed glad to hear about that. When I asked how she was doing, she said that her apartment wasn’t great, but that it was enough for her and Mocha right now. (Mocha is her dog.) Then she simply said goodbye, hoping that I’d be able to visit her soon and asking me to call her more frequently. It was a very difficult phone call for me, obviously.

Can you tell me anything new about what is happening there? How is she doing? Have you had any additional sessions with her since I spoke with you last week? Does she seem to be responding well to the new medications?

I’m sure you can understand that we are desperate for any news you can provide.

Thank you sincerely,

David Vincent Gagne