Kathie Gagne died 4,582 days ago.

Sherri Is Gone
August 11th, 2012 @ 8:16 am

I called Woodland Terrace and Marty answered. I asked to speak to Sherri Spillman, the administrator. Marty told me that Sherri was no longer there. I was confused and asked her what she meant and she told me that Sherri was no longer the administrator.

“When did this happen?” I asked. Marty said, “I can’t tell you when that happened.”

I asked, “Who is the new administrator then?” and Marty said, “I refuse to give you that information.” 1

She said that I could talk to Ida 2 and I said that that would be no use, because Ida refused to talk to me. I also said that I thought it was ridiculous that she wouldn’t give me the name of the administrator, it’s information that they publish on their website.

Marty relented and told me that James Thompson was the new administrator, but that I’d have to call on Monday if I wanted to talk to him.

The entire call lasted three minutes.


1 Note that any time I use quotation marks on this website it indicates a direct quote. Marty exactly said, “I refuse to give you that information.”
2 Ida Alvis, Director of Staff Development

Calling Dr. Peele
August 11th, 2012 @ 7:50 am

I called Dr. Peele using the number I had for him — (407) 929-5611 — which is the number that appeared on my called ID when he called me a few weeks ago. I dialed *67 first so that he wouldn’t see my Los Angeles area code, although that didn’t matter because the call went to his voice mail anyway.

I left a message asking him to please call me as soon as he could, twice repeating my phone number and spelling my name and my mother’s name.

Update: As of 3:29 PM EDT on Monday, August 13th, he has still not returned my call. Detective Whittier told me that he called him Monday morning as well and has not heard from him either.
An Email to Michelle Cofano
August 11th, 2012 @ 12:32 am

I was so upset about what happened tonight while dealing with the staff at Woodland Terrace that I sent an email to Michelle Cofano <Cofanom@elderaffairs.org>, the Registered Nurse Specialist at the Department of Elder Affairs who earlier this week helped me make some progress on obtaining Medicaid for mom.

The subject of the email was “A Trip to the ER” and here is what I wrote to her:

Dear Michelle,

You work at the Department of Elder Affairs, right?

Please read this: http://kathiegagne.com/2012/08/10/a-trip-to-the-er/

Isn’t there someone in the Department of Elder Affairs that I could contact to complain when this sort of thing happens?

I have documented here over nine months of mishaps and mistakes like this, at a half dozen different places. I am at the end of my rope.

Thank you for any information you can provide.

Update: She replied to me at 8:35 AM EDT on August 16th, four days after my mother died.
A Trip to the ER
August 10th, 2012 @ 7:18 pm

I didn’t hear the phone ring, but at 7:18 PM PDT I missed an incoming call from (386) 425-1300. I know that 386 is the area code for north central Florida, so when I noticed eight minutes later I called immediately. The man that answered the line said that I was calling the Emergency Room at Halifax Hospital.

I said, “My name is David and I’m guessing that you’re calling because my mom Kathleen is there.”

He asked me to hold on a second and someone named Lisa picked up the line. She told me that that my mom had just been admitted and asked me what I could tell her about my mom’s condition. I asked her if she could get to a computer with Internet access and gave her the address of this website. Two minutes into the call — at 7:28 PM PDT — my other line started ringing with an incoming call from Woodland Terrace.

I clicked over and Nurse Dawn started to tell me that she was just calling to let me know that they’d had to send my mom to Halifax. I told her that I was on the phone with the emergency room and asked her to hold on.

I clicked back over to Lisa at Halifax and could tell Nurse Dawn hung up just a few seconds later, (not surprisingly) refusing to wait on hold for me. I talked to Lisa for twenty-one minutes, most of which was spent explaining how frustrated I was with Halifax, the doctors, Woodland Terrace, Grace Manor, Coastal Rehab, and everything else. At one point I was telling her how annoyed I was that just this week my mom had been given a prescription for yet another psycho pharmaceutical — Risperdal — and how I had denied it until I could talk to the doctor, and I hadn’t yet heard from the doctor.

Lisa told me that according to the documentation she had been given, Woodland Terrace had administered Respirdal to my mother just this morning. There are no words to explain how angry I was at hearing that, of course.

Lisa said that they were going to run some tests on mom to make sure she was physically stable enough to return to Woodland Terrace and that they would probably send her back tonight. I thanked her and asked her to call me if she could.

Then I called Woodland Terrace at 7:48 PM PDT and had a quick, seven minute conversation with Nurse Dawn. She told me that mom had been acting increasingly anxious and agitated over the last three days, including harassing the other residents. I asked how that could possibly be the case when I have called Woodland Terrace three and five times each day, every day, for weeks now, and nobody had told me anything about that. Nurse Dawn said this evening they heard mom’s roommate yelling and a CNA went into the room to find mom in the other resident’s bed, holding her roommate, with her dinner tray of food all over the both of them. She said that it took at least two other nurses to get mom out of the bed and that she was gripping the headboard and fighting with them.

I asked why nobody thought to call me about any of this, and Nurse Dawn told me — without answering my question — that yesterday, ironically and coincidentally, some sort of legal nurse was interviewing mom’s roommate and she was complaining about mom harassing her somehow. Again I asked how all of that could be happening when I call them constantly asking for information and to talk to mom, and again she didn’t answer the question but instead told me that they had to make sure they were keeping the residents safe.

I expressed my displeasure at learning my mom had been administered Respirdal that morning, and Nurse Dawn simply told me I needed to call and talk to Cynthia tomorrow morning. (She told me Cynthia’s title but I can no longer remember what it is.) I explained to her that I was driving and couldn’t write notes in the car, so I’d have to call back as soon as I could.

When I got home, I didn’t call Nurse Dawn right away because our whole neighborhood was surrounded by news helicopters, fire trucks and ambulances, and police barricades because a plane had crashed about 300 yards from our house.

I called Woodland Terrace at 9:33 PM PDT and had a two minute conversation with someone named Janelle. It would be too harsh to say that she was rude, but she was miles away from nice or friendly, caring or sensitive. She told me that mom was on her way back there from the hospital, and that the hospital had told her that mom had a urinary tract infection and was given antibiotics. Janelle confirmed, because I specifically had to ask, that someone from Halifax had called her to tell her that.

I said, “Do you know if she already left Halifax?”

Janelle replied, “I do not know, except what I just told you, sir.”

I asked her if she would call me when my mom got back to Woodland Terrace and Janelle said that she would, if my name was on her chart. I told her that my name and number were definitely on mom’s “face sheet” and, in fact, I was probably the only person listed on her face sheet. Janelle repeated that she would call me if my name was on the chart.

At 10:26 PM PDT, Janelle did call to let me know that mom was back at Woodland Terrace. 1 We asked Janelle for a list of the medications she was being administered and she told us the antibiotics, Ativan, Zoloft, and Respirdal. The call only lasted for four minutes because my iPhone battery died.

My wife called and talked to Janelle for about seven more minutes, primarily attempting to make sure that mom isn’t administered more Respirdal, and trying to make sure we can get in touch with the morning nurse before it’s administered. My wife asked her for the name of the nurse who would be working on the morning shift and Janelle said she wasn’t allowed to give us that information. My wife asked her to explain why, and Janelle said that she couldn’t provide the nurse’s name, “in case she called in sick.” My wife told her that didn’t make any sense, and Janelle said the nurse’s name was Leeann. At that point my wife handed me the phone.

I asked Janelle if my mom was there and she said she was. I asked her if she knew the name of the doctor at Halifax who had treated my mom and she said she didn’t, and I’d have to call there to get it. I asked her if my wife had told her how upset I was about my mom being given Respirdal this morning and she — in one long breath — told me that she understood our position, that she would let them know not to give my mom that medication again until talking to me, that she was very busy and had to go, and said, “Thank you very much,” and hung up on me. Janelle had been on the phone with us for exactly thirteen minutes when she apparently decided she’d had enough. 2

My wife, upset that Janelle had hung up on me, called Woodland Terrace at 10:46 PM PDT and talked to someone there named Jenna for six minutes, complaining about their lack of professionalism.


1 My wife answered my phone and talked to her.
2 One four minute call when my battery died and then the nine minute call when we called back.

Re: CHECKS
August 9th, 2012 @ 11:33 am

Just a few days before mom died, my sister and I had this email exchange:

 
 
 
 
A Fall
August 9th, 2012 @ 10:33 am

Someone named Raquel with a very strong Eastern European accent just called me from Woodland Terrace. She said she just wanted to let me know that mom had had “a fall” but that she was okay.

Raquel said mom was sitting in her chair watching TV when she suddenly stood up, took a few steps, and then fell. She said that a nursing assistant happened to be right there and that mom was not harmed at all by the fall.

Medicaid Application Process
August 8th, 2012 @ 11:02 am

Michelle Cofano from the Department of Elder Affairs replied to my earlier email with:

Now that the Level of Care determination is completed, the Department of Children and Families will continue the process of financial approval.

Update: I replied to her on Thursday, August 9th, 2012 at 8:10 AM PDT with the following message:

Dear Michelle,

Can you tell me to whom at DCF you hand-delivered the “Level of Care” documentation? Do you have contact information for that person?

I am sure you can understand that I am wary of simply placing my faith in the efficiency of the government of the State of Florida. I need to know exactly what the next step is in this process.

What I mean is that “the Department of Children and Families” is never going to do anything. Somewhere there is a human being who needs to do something. I need to know who that is so I can ask him or her what is going to happen next.

Thanks in advance for any information you can provide,
David

Update: Michelle replied to me on Friday, August 10th, 2012 at 8:22 AM PDT with the following message:

Hello David,

I delivered the Level of Care to the office of The Department of Children and Families. The Level of Care is then forwarded to a case worker who is assigned to your mother’s case. I do not have the name of the case worker or the knowledge to answer your questions as I do not work for DCF. Please contact DCF at: 1 866-762-2237 for further information. I am sorry I cannot help more but I do not want to give you inaccurate information.

Thank You,
Michelle Cofano

A Different Psychiatrist
August 8th, 2012 @ 11:00 am

This morning I called Jessica Silvey — the unit manager of the West wing at Woodland Terrace — to ask her about the psychologist who saw mom yesterday and my conversation last night with Nurse Cheryl. She was very nice and super helpful; she explained everything.

The confusion stemmed from the fact that mom saw both a psychologist and a psychiatrist yesterday. As I suspected, the psychologist, Dr. Susan Merrick, was not the one who suggested that mom start taking Risperdal. That request came from the psychiatrist, Dr. Stephanie Mossler. (Nurse Cheryl was correct about getting approval from Dr. Peele, though.)

Jessica told me that this morning Nurse Luanne called Huntington Health Care, the company that employs Dr. Mossler, and requested that they have her call me to discuss the new medication. Jessica also said that she would double-check later this afternoon (before she left for the day) to make sure they call me.

Huntington Health Care is the same company that employed Dr. Stephen Oh — the doctor Shelly told me would be seeing mom — but he has apparently moved, which is why Dr. Mossler is seeing mom now instead.
Level of Care Confirmation
August 8th, 2012 @ 10:32 am

True to her word, Michelle Cofano <Cofanom@elderaffairs.org> from the Florida Department of Elder Affairs emailed me today to confirm that she submitted her “Level of Care” report:

Hey David,
I just wanted to let you know I personally faxed the Level of Care this afternoon to the nursing home and I hand delivered the Level of Care to the Department of Children and Families. Hope this helps.

Michelle Cofano
Registered Nurse Specialist
Department of Elder Affairs
CARES-4B
210 N. Palmetto Ave.
Daytona Beach, FL 32114

I replied to her (and copied Shelly at Woodland Terrace) with:

Dear Michelle,

Thank you so much. I really appreciate the time you spent on the phone with me yesterday, and it was very nice of you to confirm that this step has been completed.

Can you tell me what the next step in the Medicaid application approval process is?

A Request to Administer Risperdal
August 7th, 2012 @ 4:48 pm

Nurse Cheryl from Woodland Terrace called me just before five o’clock my time. She said she had a report from the psychologist who visited mom this morning which recommended that mom be administered Risperdal.

I interrupted because I thought that mom was supposed to have seen Dr. Oh, a psychiatrist this morning, and that only psychiatrists (and not psychologists) were able to prescribe drugs. Nurse Cheryl said that “she” was definitely a psychologist and not a psychiatrist, and that she — Nurse Cheryl — had just called Dr. Peele and he had approved administering .025 of Risperdal. I asked her if she knew the name of the psychologist and she said that she couldn’t read it on the chart. I asked how she knew it was a woman (because Nurse Cheryl kept referring to the psychologist using feminine pronouns) and she said that it was because the morning nurse had been referring to the psychologist as a “she” when she (the morning nurse) told her (Nurse Cheryl) about the psychologist visiting.

Nurse Cheryl said that she wasn’t going to add the prescription to mom’s chart without talking to me first, and I said I appreciated that, and that I really wanted to talk to the doctor who recommended it first. She said I should call tomorrow and ask to talk to Jessica, the “unit manager of the West wing”. Nurse Cheryl said that Jessica could probably get me the doctor’s name and more information. I thanked her and said I really would prefer to at the very least get the doctor’s name before agreeing to give mom more drugs.

Nurse Cheryl said that was okay and that she would let Dr. Peele know.

The entire call lasted about five minutes.